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More than 3,700 PNH patients strong — and counting

The PNH Registry is an international, observational and noninterventional study collecting safety, effectiveness and QoL data on PNH patients

Unite with a global community of physicians in contributing to the largest, most comprehensive patient registry. Those eligible for enrolment include all patients who have been newly or previously diagnosed with PNH or have evidence of positive PNH cells.

  • All physicians managing patients with PNH, regardless of treatment approach, are encouraged to participate

Contribute to treatment objectives, practice patterns and best practices.

  • An invaluable opportunity to increase understanding of the natural history of PNH and the safety and efficacy of treatments

Support scientific collaboration in the PNH community.

  • Offers the international community greater insight into an uncommon disease with potentially devastating consequences

To discuss having your patient enrolled in the registry