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The Canadian PNH Network — who we are

The Canadian PNH Network is a collection of paroxysmal nocturnal hemoglobinuria (PNH) experts dedicated to the diagnosis, treatment, management, education and investigation of PNH

Our Mission

Patients in Canada must receive world-leading care that extends over case recognition, diagnosis and treatment follow-up

Our Vision

  • To maintain the highest standard of clinical practice in the management of PNH
  • To provide continuing health education on the evolving management of PNH patients
  • To participate in the PNH Registry to gain further understanding of the natural history of PNH

All centres in the Canadian PNH Network remain pleased to offer a shared care approach for the clinical management of patients with PNH, where this is the preference of the referring clinician

Services we provide

  • State-of-the-art methods in flow cytometry for PNH diagnosis
  • Treatment and follow-up of PNH patients
  • Continuing health education to the broader community and knowledge translation
  • Enrolment into the International PNH Registry to help provide greater insight into this serious disease

Contact your local PNH Expert for additional PNH education resources, including slide presentations